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THE LONG PUSH 2012 is sponsored by...

THE LONG PUSH has been sponsored and supported by the following companies and individuals...

BIG WOODY'S SKATEBOARD SHOP : DC SHOES : ORANGATANG WHEELS/J&R SPORTS : SPORTING SAILS : SKATEFURTHER :

WOODY & DRE (BIG WOODY'S): MARK ROBINSON (OBAS UK): KYLE CHIN(LOADED BOARDS) : RICHARD BIRCHWOOD (J&R SPORTS): BILLY & NICK SMITH (SPORTING SAILS) JULIET & THE STAFF OF TESCO EXPRESS, ALBERT ROAD, SOUTHPORT :

If you would like to sponsor me on my journeys, please contact me at the_long_push@btinternet.com

justgiving - sponsor me now!

Friday, 18 May 2012

'LIfe with Children on the Spectrum'. A post from Carol McKiernan Founder & Chairman of Families Connected

 
FAMILIES CONNECTED is the chosen charity that The Long Push 2012 is supporting this year. We first saw Carol when she spoke at an autism workshop hosted by AUTISM INITIATIVES (http://www.autisminitiatives.org/) here in Merseyside. Carol spoke and we all listened and nodded our heads as she described those common incidents and triggers that we as parents and guardians of cheildren on the autism spectrum, experience daily. This was the first time that I realised (in true Close Encounters style), "We are not alone". As our situation became more complex, we reached out for support and found it through Carol and Families Connected. Carol has been enormously supportive of us. She has given up her time to come and visit us at home and see, first hand, our situation. Her experience as the mother of a son on the spectrum has been invaluable and she has supported us at all three CAF meetings we have attended, even acting as advocate for 'Rachael' when I wasn't able to attend due to work. All of this contributed to me choosing to try and support Carol and help Families Connected grow, to able to support more families, facing the difficulties that an autism diagnosis brings.
 
A while ago I asked Carol if she would write a short piece for this blog. This is her post...
 
 
'LIFE WITH CHILDREN ON THE SPECTRUM'

As a parent of an ASC child (Aspergers & ADHD) day to day living is like a rollercoaster ride. These children live in their own world which is, unbelievably different to ours. Somebody once said to me “you have to take a giant leap into their world because they cannot live in yours” and never a truer word spoken. The actual real life situation is one of treading water every day just to get through in the easiest way you can. Trials and tribulations are a constant thing from getting up in the morning to going to bed at night.

Undoubtedly one of the most difficult things to deal with for a parent of a child on the Spectrum is that sometimes the disability is not always seen. I myself call this the silent disability as, when you see a child/young person in a wheelchair the human reaction is sympathy and pity whilst for other children on the spectrum their behaviour is seen to be a production of bad parenting which causes major anxieties for the parents/families.

The aim of Families Connected is to somewhat assist in lightening the load of the burden that we carry everyday and to raise awareness of this disability to the outside world which in turn with understanding, care and love will make it easier for the family to live with.    


Carol McKiernan
Founder & Chairman
Families Connected     


To find out more about Families Connected visit their web page at www.families-connected.org.uk or on Facebook at https://www.facebook.com/pages/Families-Connected/190465257668501?ref=ts



     

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